Savi R Shishkov
Savi R Shishkov
Department of Endocrinology, Medical University of Varna, Clinic of Endocrinology, UMHAT “Sveta Marina”, Varna, Bulgaria
Division of Endocrinology, Department of Medicine, Leiden University Medical Center, Leiden, the Netherlands
Search for other papers by Savi R Shishkov in
Google Scholar
PubMed
Division of Endocrinology, Department of Medicine, Leiden University Medical Center, Leiden, the Netherlands
Search for other papers by Savi R Shishkov in
Google Scholar
PubMed
Luigi Tuccillo
Luigi Tuccillo
Division of Endocrinology, Department of Medicine, Leiden University Medical Center, Leiden, the Netherlands
Università “Federico II” di Napoli, Dipartimento di Medicina Clinica e Chirurgia, Sezione di Endocrinologia, Naples, Italy
Search for other papers by Luigi Tuccillo in
Google Scholar
PubMed
Università “Federico II” di Napoli, Dipartimento di Medicina Clinica e Chirurgia, Sezione di Endocrinologia, Naples, Italy
Search for other papers by Luigi Tuccillo in
Google Scholar
PubMed
Violeta M Iotova
Violeta M Iotova
Department of Pediatrics, Medical University of Varna, First Pediatric Clinic with Intensive Care, UMHAT “Sveta Marina”, Varna, Bulgaria
Search for other papers by Violeta M Iotova in
Google Scholar
PubMed
Search for other papers by Violeta M Iotova in
Google Scholar
PubMed
Rosario Pivonello
Rosario Pivonello
Università “Federico II” di Napoli, Dipartimento di Medicina Clinica e Chirurgia, Sezione di Endocrinologia, Naples, Italy
Search for other papers by Rosario Pivonello in
Google Scholar
PubMed
Search for other papers by Rosario Pivonello in
Google Scholar
PubMed
Iris CM Pelsma
Iris CM Pelsma
Division of Endocrinology, Department of Medicine, Leiden University Medical Center, Leiden, the Netherlands
Search for other papers by Iris CM Pelsma in
Google Scholar
PubMed
Search for other papers by Iris CM Pelsma in
Google Scholar
PubMed
Alberto M Pereira
Alberto M Pereira
Division of Endocrinology, Department of Medicine, Leiden University Medical Center, Leiden, the Netherlands
Department of Endocrinology and Metabolism, Amsterdam Gastroenterology Endocrinology & Metabolism, Amsterdam University Medical Centre, University of Amsterdam, Amsterdam, Netherlands
Search for other papers by Alberto M Pereira in
Google Scholar
PubMed
Department of Endocrinology and Metabolism, Amsterdam Gastroenterology Endocrinology & Metabolism, Amsterdam University Medical Centre, University of Amsterdam, Amsterdam, Netherlands
Search for other papers by Alberto M Pereira in
Google Scholar
PubMed
Nienke R Biermasz
Nienke R Biermasz
Division of Endocrinology, Department of Medicine, Leiden University Medical Center, Leiden, the Netherlands
Adult Chair of MTG Pituitary of Endo-ERN
Search for other papers by Nienke R Biermasz in
Google Scholar
PubMed
Adult Chair of MTG Pituitary of Endo-ERN
Search for other papers by Nienke R Biermasz in
Google Scholar
PubMed
the Endo-ERN Reference Centers of the Main Thematic Group: Hypothalamic and Pituitary Conditions, Endo-ERN Pituitary Transition of Care Study Group
the Endo-ERN Reference Centers of the Main Thematic Group: Hypothalamic and Pituitary Conditions, Endo-ERN Pituitary Transition of Care Study Group
the Endo-ERN Reference Centers of the Main Thematic Group: Hypothalamic and Pituitary Conditions, Endo-ERN Pituitary Transition of Care Study Group
Search for other papers by the Endo-ERN Reference Centers of the Main Thematic Group: Hypothalamic and Pituitary Conditions, Endo-ERN Pituitary Transition of Care Study Group in
Google Scholar
PubMed
Search for other papers by the Endo-ERN Reference Centers of the Main Thematic Group: Hypothalamic and Pituitary Conditions, Endo-ERN Pituitary Transition of Care Study Group in
Google Scholar
PubMed
from childhood to adulthood. Despite the importance of this period, agreement on how to define (timing of) transition is nonexistent. Previously, physicians have defined transition as the transitional phase between the end of puberty and reaching peak
M Ahmid
M Ahmid
Developmental Endocrinology Research Group, Royal Hospital for Children, School of Medicine, University of Glasgow, Glasgow, UK
Search for other papers by M Ahmid in
Google Scholar
PubMed
Search for other papers by M Ahmid in
Google Scholar
PubMed
C G Perry
C G Perry
Department of Endocrinology, Queen Elizabeth University Hospitals, Glasgow, UK
Search for other papers by C G Perry in
Google Scholar
PubMed
Search for other papers by C G Perry in
Google Scholar
PubMed
S F Ahmed
S F Ahmed
Developmental Endocrinology Research Group, Royal Hospital for Children, School of Medicine, University of Glasgow, Glasgow, UK
Search for other papers by S F Ahmed in
Google Scholar
PubMed
Search for other papers by S F Ahmed in
Google Scholar
PubMed
M G Shaikh
M G Shaikh
Developmental Endocrinology Research Group, Royal Hospital for Children, School of Medicine, University of Glasgow, Glasgow, UK
Search for other papers by M G Shaikh in
Google Scholar
PubMed
Search for other papers by M G Shaikh in
Google Scholar
PubMed
maximal oxygen consumption (VO 2 max). The primary aim of this review was to identify what evidence is available on the risks of GHD and the benefits of rhGH therapy during the transition period in the following areas: bone mass, body
Christine Poitou
Christine Poitou
Assistance Publique-Hôpitaux de Paris, Centre de référence Maladies Rares (PRADORT, Syndrome de Prader-Willi et autres formes rares d’obésité avec troubles du comportement alimentaire), Service de Nutrition, Hôpital Pitié-Salpêtrière, Paris, France
Search for other papers by Christine Poitou in
Google Scholar
PubMed
Search for other papers by Christine Poitou in
Google Scholar
PubMed
Anthony Holland
Anthony Holland
Department of Psychiatry, University of Cambridge, UK
Search for other papers by Anthony Holland in
Google Scholar
PubMed
Search for other papers by Anthony Holland in
Google Scholar
PubMed
Charlotte Höybye
Charlotte Höybye
Department of Endocrinology and Department of Molecular Medicine and Surgery, Karolinska University Hospital and Karolinska Institute, Stockholm, Sweden
Search for other papers by Charlotte Höybye in
Google Scholar
PubMed
Search for other papers by Charlotte Höybye in
Google Scholar
PubMed
Laura C G de Graaff
Laura C G de Graaff
Center for Adults with Rare Genetic Syndromes, Department of Internal Medicine, Division of Endocrinology, Erasmus Medical Center, University Medical Center Rotterdam, Rotterdam, The Netherlands
Search for other papers by Laura C G de Graaff in
Google Scholar
PubMed
Search for other papers by Laura C G de Graaff in
Google Scholar
PubMed
Sandrine Bottius
Sandrine Bottius
Assistance Publique-Hôpitaux de Paris, Centre de référence Maladies Rares (PRADORT, Syndrome de Prader-Willi et autres formes rares d’obésité avec troubles du comportement alimentaire), Service de Nutrition, Hôpital Pitié-Salpêtrière, Paris, France
Search for other papers by Sandrine Bottius in
Google Scholar
PubMed
Search for other papers by Sandrine Bottius in
Google Scholar
PubMed
Berit Otterlei
Berit Otterlei
Landsforeningen for Prader-Willis Syndrom Hiltonåsen, Slependen, Norway
Search for other papers by Berit Otterlei in
Google Scholar
PubMed
Search for other papers by Berit Otterlei in
Google Scholar
PubMed
Maithé Tauber
Maithé Tauber
Centre de référence Maladies Rares (PRADORT, Syndrome de Prader-Willi et autres formes rares d’obésité avec troubles du comportement alimentaire), Service d’Endocrinologie, Obésités, Maladies Osseuses, Génétique et Gynécologie Médicale, Hôpital des Enfants, Toulouse, France
Search for other papers by Maithé Tauber in
Google Scholar
PubMed
Search for other papers by Maithé Tauber in
Google Scholar
PubMed
treatment in the transition period or for adults only in a few countries ( 2 , 17 ). Therefore, in most countries, the diagnosis of adult GH deficiency must be established according to guidelines before it can be used in the transition period and in adults
Mirjana Doknic
Mirjana Doknic
Neuroendocrine Department, Clinic for Endocrinology, Diabetes and Metabolic Diseases, University Clinical Center of Serbia, Belgrade, Serbia
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Mirjana Doknic in
Google Scholar
PubMed
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Mirjana Doknic in
Google Scholar
PubMed
Marko Stojanovic
Marko Stojanovic
Neuroendocrine Department, Clinic for Endocrinology, Diabetes and Metabolic Diseases, University Clinical Center of Serbia, Belgrade, Serbia
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Marko Stojanovic in
Google Scholar
PubMed
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Marko Stojanovic in
Google Scholar
PubMed
Ivan Soldatovic
Ivan Soldatovic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Institute of Medical Statistics and Informatics, Belgrade, Serbia
Search for other papers by Ivan Soldatovic in
Google Scholar
PubMed
Institute of Medical Statistics and Informatics, Belgrade, Serbia
Search for other papers by Ivan Soldatovic in
Google Scholar
PubMed
Tatjana Milenkovic
Tatjana Milenkovic
Mother and Child Health Care Institute of Serbia ‘Dr Vukan Cupic’, Belgrade, Serbia
Search for other papers by Tatjana Milenkovic in
Google Scholar
PubMed
Search for other papers by Tatjana Milenkovic in
Google Scholar
PubMed
Vera Zdravkovic
Vera Zdravkovic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
University Children’s Clinic, Belgrade, Serbia
Search for other papers by Vera Zdravkovic in
Google Scholar
PubMed
University Children’s Clinic, Belgrade, Serbia
Search for other papers by Vera Zdravkovic in
Google Scholar
PubMed
Maja Jesic
Maja Jesic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
University Children’s Clinic, Belgrade, Serbia
Search for other papers by Maja Jesic in
Google Scholar
PubMed
University Children’s Clinic, Belgrade, Serbia
Search for other papers by Maja Jesic in
Google Scholar
PubMed
Sladjana Todorovic
Sladjana Todorovic
Mother and Child Health Care Institute of Serbia ‘Dr Vukan Cupic’, Belgrade, Serbia
Search for other papers by Sladjana Todorovic in
Google Scholar
PubMed
Search for other papers by Sladjana Todorovic in
Google Scholar
PubMed
Katarina Mitrovic
Katarina Mitrovic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Mother and Child Health Care Institute of Serbia ‘Dr Vukan Cupic’, Belgrade, Serbia
Search for other papers by Katarina Mitrovic in
Google Scholar
PubMed
Mother and Child Health Care Institute of Serbia ‘Dr Vukan Cupic’, Belgrade, Serbia
Search for other papers by Katarina Mitrovic in
Google Scholar
PubMed
Rade Vukovic
Rade Vukovic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Mother and Child Health Care Institute of Serbia ‘Dr Vukan Cupic’, Belgrade, Serbia
Search for other papers by Rade Vukovic in
Google Scholar
PubMed
Mother and Child Health Care Institute of Serbia ‘Dr Vukan Cupic’, Belgrade, Serbia
Search for other papers by Rade Vukovic in
Google Scholar
PubMed
Dragana Miljic
Dragana Miljic
Neuroendocrine Department, Clinic for Endocrinology, Diabetes and Metabolic Diseases, University Clinical Center of Serbia, Belgrade, Serbia
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Dragana Miljic in
Google Scholar
PubMed
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Dragana Miljic in
Google Scholar
PubMed
Dragan Savic
Dragan Savic
Clinic for Neurosurgery, University Clinical Center of Serbia, Belgrade, Serbia
Search for other papers by Dragan Savic in
Google Scholar
PubMed
Search for other papers by Dragan Savic in
Google Scholar
PubMed
Mihajlo Milicevic
Mihajlo Milicevic
Clinic for Neurosurgery, University Clinical Center of Serbia, Belgrade, Serbia
Search for other papers by Mihajlo Milicevic in
Google Scholar
PubMed
Search for other papers by Mihajlo Milicevic in
Google Scholar
PubMed
Aleksandar Stanimirovic
Aleksandar Stanimirovic
Clinic for Neurosurgery, University Clinical Center of Serbia, Belgrade, Serbia
Search for other papers by Aleksandar Stanimirovic in
Google Scholar
PubMed
Search for other papers by Aleksandar Stanimirovic in
Google Scholar
PubMed
Vojislav Bogosavljevic
Vojislav Bogosavljevic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Clinic for Neurosurgery, University Clinical Center of Serbia, Belgrade, Serbia
Search for other papers by Vojislav Bogosavljevic in
Google Scholar
PubMed
Clinic for Neurosurgery, University Clinical Center of Serbia, Belgrade, Serbia
Search for other papers by Vojislav Bogosavljevic in
Google Scholar
PubMed
Sandra Pekic
Sandra Pekic
Neuroendocrine Department, Clinic for Endocrinology, Diabetes and Metabolic Diseases, University Clinical Center of Serbia, Belgrade, Serbia
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Sandra Pekic in
Google Scholar
PubMed
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Sandra Pekic in
Google Scholar
PubMed
Emilija Manojlovic-Gacic
Emilija Manojlovic-Gacic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Institute of Pathology, Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Emilija Manojlovic-Gacic in
Google Scholar
PubMed
Institute of Pathology, Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Emilija Manojlovic-Gacic in
Google Scholar
PubMed
Aleksandar Djukic
Aleksandar Djukic
Department of Pathophysiology, Faculty of Medical Sciences, University of Kragujevac, Kragujevac, Serbia
Search for other papers by Aleksandar Djukic in
Google Scholar
PubMed
Search for other papers by Aleksandar Djukic in
Google Scholar
PubMed
Danica Grujicic
Danica Grujicic
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Clinic for Neurosurgery, University Clinical Center of Serbia, Belgrade, Serbia
Search for other papers by Danica Grujicic in
Google Scholar
PubMed
Clinic for Neurosurgery, University Clinical Center of Serbia, Belgrade, Serbia
Search for other papers by Danica Grujicic in
Google Scholar
PubMed
Milan Petakov
Milan Petakov
Neuroendocrine Department, Clinic for Endocrinology, Diabetes and Metabolic Diseases, University Clinical Center of Serbia, Belgrade, Serbia
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Milan Petakov in
Google Scholar
PubMed
Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Search for other papers by Milan Petakov in
Google Scholar
PubMed
density (BMD) impairment in different COGHD subgroups ( 1 ). Observations are particularly contradictory concerning BC and BMD in respect of the role of rhGH continuation in the transition period (TP). Several studies have demonstrated improvement of these
M Guftar Shaikh
M Guftar Shaikh
Department of Paediatric Endocrinology, Royal Hospital for Children, Glasgow, UK
Developmental Endocrinology Research Group, University of Glasgow, Glasgow, UK
Search for other papers by M Guftar Shaikh in
Google Scholar
PubMed
Developmental Endocrinology Research Group, University of Glasgow, Glasgow, UK
Search for other papers by M Guftar Shaikh in
Google Scholar
PubMed
Timothy G Barrett
Timothy G Barrett
Department of Endocrinology, Birmingham Womens and Children’s Hospital, Birmingham, UK
Institute of Cancer and Genomic Sciences, University of Birmingham, Birmingham, UK
Search for other papers by Timothy G Barrett in
Google Scholar
PubMed
Institute of Cancer and Genomic Sciences, University of Birmingham, Birmingham, UK
Search for other papers by Timothy G Barrett in
Google Scholar
PubMed
Nicola Bridges
Nicola Bridges
Department of Paediatric Endocrinology, Chelsea and Westminster Hospital, London, UK
Search for other papers by Nicola Bridges in
Google Scholar
PubMed
Search for other papers by Nicola Bridges in
Google Scholar
PubMed
Robin Chung
Robin Chung
Research Working Group, Prader-Willi Syndrome Association, Northampton, UK
Search for other papers by Robin Chung in
Google Scholar
PubMed
Search for other papers by Robin Chung in
Google Scholar
PubMed
Evelien F Gevers
Evelien F Gevers
Department of Paediatric Endocrinology, Barts Health NHS Trust, Royal London Hospital, London, UK
Centre for Endocrinology, William Harvey Research Institute, Barts and The London Medical School, Queen Mary University of London, London, UK
Search for other papers by Evelien F Gevers in
Google Scholar
PubMed
Centre for Endocrinology, William Harvey Research Institute, Barts and The London Medical School, Queen Mary University of London, London, UK
Search for other papers by Evelien F Gevers in
Google Scholar
PubMed
Anthony P Goldstone
Anthony P Goldstone
PsychoNeuroEndocrinologyResearch Group, Division of Psychiatry, Department of Brain Sciences, Faculty of Medicine, Imperial College London, London, UK
Department of Endocrinology, Imperial College Healthcare NHS Trust, Hammersmith Hospital, London, UK
Search for other papers by Anthony P Goldstone in
Google Scholar
PubMed
Department of Endocrinology, Imperial College Healthcare NHS Trust, Hammersmith Hospital, London, UK
Search for other papers by Anthony P Goldstone in
Google Scholar
PubMed
Anthony Holland
Anthony Holland
Department of Psychiatry, University of Cambridge, Cambridge, UK
Search for other papers by Anthony Holland in
Google Scholar
PubMed
Search for other papers by Anthony Holland in
Google Scholar
PubMed
Shankar Kanumakala
Shankar Kanumakala
Royal Alexandra Children’s Hospital, Brighton, UK
Search for other papers by Shankar Kanumakala in
Google Scholar
PubMed
Search for other papers by Shankar Kanumakala in
Google Scholar
PubMed
Ruth Krone
Ruth Krone
Department of Endocrinology, Birmingham Womens and Children’s Hospital, Birmingham, UK
Search for other papers by Ruth Krone in
Google Scholar
PubMed
Search for other papers by Ruth Krone in
Google Scholar
PubMed
Andreas Kyriakou
Andreas Kyriakou
Department of Paediatric Endocrinology, Royal Hospital for Children, Glasgow, UK
Department of Paediatric Endocrinology, Makarios Children's Hospital, Nicosia, Cyprus
Search for other papers by Andreas Kyriakou in
Google Scholar
PubMed
Department of Paediatric Endocrinology, Makarios Children's Hospital, Nicosia, Cyprus
Search for other papers by Andreas Kyriakou in
Google Scholar
PubMed
E Anne Livesey
E Anne Livesey
Royal Alexandra Children’s Hospital, Brighton, UK
Sussex Community NHS Trust, Brighton, UK
Search for other papers by E Anne Livesey in
Google Scholar
PubMed
Sussex Community NHS Trust, Brighton, UK
Search for other papers by E Anne Livesey in
Google Scholar
PubMed
Angela K Lucas-Herald
Angela K Lucas-Herald
Department of Paediatric Endocrinology, Royal Hospital for Children, Glasgow, UK
Developmental Endocrinology Research Group, University of Glasgow, Glasgow, UK
Search for other papers by Angela K Lucas-Herald in
Google Scholar
PubMed
Developmental Endocrinology Research Group, University of Glasgow, Glasgow, UK
Search for other papers by Angela K Lucas-Herald in
Google Scholar
PubMed
Christina Meade
Christina Meade
CHI at Tallaght University Hospital, Dublin, Republic of Ireland
Search for other papers by Christina Meade in
Google Scholar
PubMed
Search for other papers by Christina Meade in
Google Scholar
PubMed
Susan Passmore
Susan Passmore
Prader-Willi Syndrome Association, Northampton, UK
Search for other papers by Susan Passmore in
Google Scholar
PubMed
Search for other papers by Susan Passmore in
Google Scholar
PubMed
Edna Roche
Edna Roche
CHI at Tallaght University Hospital, Dublin, Republic of Ireland
The University of Dublin, Trinity College Dublin, Dublin, Republic of Ireland
Search for other papers by Edna Roche in
Google Scholar
PubMed
The University of Dublin, Trinity College Dublin, Dublin, Republic of Ireland
Search for other papers by Edna Roche in
Google Scholar
PubMed
Chris Smith
Chris Smith
Royal Alexandra Children’s Hospital, Brighton, UK
Search for other papers by Chris Smith in
Google Scholar
PubMed
Search for other papers by Chris Smith in
Google Scholar
PubMed
Sarita Soni
Sarita Soni
Learning Disability Psychiatry, NHS Greater Glasgow and Clyde, Glasgow, UK
Search for other papers by Sarita Soni in
Google Scholar
PubMed
Search for other papers by Sarita Soni in
Google Scholar
PubMed
developmental phase in PWS. Hypotonia, poor feeding and faltering growth are dominant features in the neonatal period and whilst most infants are diagnosed early on, there still remains a delay in diagnosis for some patients ( 4 ). Nutritional and growth phases
Kristian Almstrup
Kristian Almstrup
Department of Growth and Reproduction, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Kristian Almstrup in
Google Scholar
PubMed
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Kristian Almstrup in
Google Scholar
PubMed
Hanne Frederiksen
Hanne Frederiksen
Department of Growth and Reproduction, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Hanne Frederiksen in
Google Scholar
PubMed
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Hanne Frederiksen in
Google Scholar
PubMed
Anna-Maria Andersson
Anna-Maria Andersson
Department of Growth and Reproduction, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Anna-Maria Andersson in
Google Scholar
PubMed
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Anna-Maria Andersson in
Google Scholar
PubMed
Anders Juul
Anders Juul
Department of Growth and Reproduction, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Anders Juul in
Google Scholar
PubMed
International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health (EDMaRC), Rigshospitalet, University of Copenhagen, Copenhagen, Denmark
Search for other papers by Anders Juul in
Google Scholar
PubMed
analyzed according to previously described methods ( 21 , 22 ) and the measured urinary concentrations of phthalate metabolites have been published before ( 17 ). The EDCs were measured in samples collected twice each year during pubertal transition ( Fig
Anne Bachelot
Anne Bachelot
Department of Endocrinology and Reproductive Medicine and Centre de Référence des Maladies Endocriniennes Rares de la croissance et Centre des Pathologies gynécologiques Rares, AP-HP, IE3M, Hôpital Pitié-Salpêtrière, ICAN, Paris, France
UPMC Univ, Paris, France
Search for other papers by Anne Bachelot in
Google Scholar
PubMed
UPMC Univ, Paris, France
Search for other papers by Anne Bachelot in
Google Scholar
PubMed
Magaly Vialon
Magaly Vialon
Department of Endocrinology and Reproductive Medicine and Centre de Référence des Maladies Endocriniennes Rares de la croissance et Centre des Pathologies gynécologiques Rares, AP-HP, IE3M, Hôpital Pitié-Salpêtrière, ICAN, Paris, France
Search for other papers by Magaly Vialon in
Google Scholar
PubMed
Search for other papers by Magaly Vialon in
Google Scholar
PubMed
Amandine Baptiste
Amandine Baptiste
AP-HP, Clinical Research Unit Paris Descartes Necker Cochin, Paris, France
Search for other papers by Amandine Baptiste in
Google Scholar
PubMed
Search for other papers by Amandine Baptiste in
Google Scholar
PubMed
Isabelle Tejedor
Isabelle Tejedor
Department of Endocrinology and Reproductive Medicine and Centre de Référence des Maladies Endocriniennes Rares de la croissance et Centre des Pathologies gynécologiques Rares, AP-HP, IE3M, Hôpital Pitié-Salpêtrière, ICAN, Paris, France
Search for other papers by Isabelle Tejedor in
Google Scholar
PubMed
Search for other papers by Isabelle Tejedor in
Google Scholar
PubMed
Caroline Elie
Caroline Elie
AP-HP, Clinical Research Unit Paris Descartes Necker Cochin, Paris, France
Search for other papers by Caroline Elie in
Google Scholar
PubMed
Search for other papers by Caroline Elie in
Google Scholar
PubMed
Michel Polak
Michel Polak
Department of Pediatric Endocrinology, Gynecology and Diabetology, Centre de Référence des Maladies Endocriniennes Rares de la Croissance et Centre des pathologies gynécologiques Rares, Hôpital Universitaire Necker Enfants malades, Paris, France
Université Paris Descartes, Paris, France
Search for other papers by Michel Polak in
Google Scholar
PubMed
Université Paris Descartes, Paris, France
Search for other papers by Michel Polak in
Google Scholar
PubMed
Philippe Touraine
Philippe Touraine
Department of Endocrinology and Reproductive Medicine and Centre de Référence des Maladies Endocriniennes Rares de la croissance et Centre des Pathologies gynécologiques Rares, AP-HP, IE3M, Hôpital Pitié-Salpêtrière, ICAN, Paris, France
UPMC Univ, Paris, France
Search for other papers by Philippe Touraine in
Google Scholar
PubMed
UPMC Univ, Paris, France
Search for other papers by Philippe Touraine in
Google Scholar
PubMed
the CRMERC study group
the CRMERC study group
Search for other papers by the CRMERC study group in
Google Scholar
PubMed
Search for other papers by the CRMERC study group in
Google Scholar
PubMed
organization of transition is important in order to support and encourage these patients in this stressful period. The goal is also not to lose follow-up. However, very few studies have examined transitional care and its determinants in real life. Transition of
Enora Le Roux
Enora Le Roux
Université de Paris, ECEVE UMR 1123, Inserm, Paris, France
AP-HP.Nord-Université de Paris, Hôpital Universitaire Robert Debré, Unité d’Épidémiologie Clinique, Inserm, Paris, France
Search for other papers by Enora Le Roux in
Google Scholar
PubMed
AP-HP.Nord-Université de Paris, Hôpital Universitaire Robert Debré, Unité d’Épidémiologie Clinique, Inserm, Paris, France
Search for other papers by Enora Le Roux in
Google Scholar
PubMed
Florence Menesguen
Florence Menesguen
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service d’Endocrinologie et Médecine de la Reproduction, Centre de Maladies Endocriniennes Rares de la Croissance et du Développement, Centre de Pathologies Gynécologiques Rares, Paris, France
Search for other papers by Florence Menesguen in
Google Scholar
PubMed
Search for other papers by Florence Menesguen in
Google Scholar
PubMed
Isabelle Tejedor
Isabelle Tejedor
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service d’Endocrinologie et Médecine de la Reproduction, Centre de Maladies Endocriniennes Rares de la Croissance et du Développement, Centre de Pathologies Gynécologiques Rares, Paris, France
Search for other papers by Isabelle Tejedor in
Google Scholar
PubMed
Search for other papers by Isabelle Tejedor in
Google Scholar
PubMed
Marc Popelier
Marc Popelier
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service de Diabétologie, Paris, France
Search for other papers by Marc Popelier in
Google Scholar
PubMed
Search for other papers by Marc Popelier in
Google Scholar
PubMed
Marine Halbron
Marine Halbron
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service de Diabétologie, Paris, France
Search for other papers by Marine Halbron in
Google Scholar
PubMed
Search for other papers by Marine Halbron in
Google Scholar
PubMed
Pauline Faucher
Pauline Faucher
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service de Nutrition, Centre du Syndrome de Prader-Willi et Autres Obésités Rares, Paris, France
Search for other papers by Pauline Faucher in
Google Scholar
PubMed
Search for other papers by Pauline Faucher in
Google Scholar
PubMed
Sabine Malivoir
Sabine Malivoir
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service d’Endocrinologie et Médecine de la Reproduction, Centre de Maladies Endocriniennes Rares de la Croissance et du Développement, Centre de Pathologies Gynécologiques Rares, Paris, France
Search for other papers by Sabine Malivoir in
Google Scholar
PubMed
Search for other papers by Sabine Malivoir in
Google Scholar
PubMed
Graziella Pinto
Graziella Pinto
AP-HP.Université de Paris Centre, Hôpital Universitaire Necker Enfants Malades, Département d’Endocrinologie, Diabétologie et Gynécologie Pédiatrique, Paris, France; Centre de Maladies Endocriniennes Rares de la Croissance et du Développement, Centre de Pathologies Gynécologiques Rares, Paris, France
Search for other papers by Graziella Pinto in
Google Scholar
PubMed
Search for other papers by Graziella Pinto in
Google Scholar
PubMed
Juliane Léger
Juliane Léger
AP-HP.Nord-Université de Paris, Hôpital Universitaire Robert Debré, Service d’Endocrinologie Diabétologie Pédiatrique, Centre de Référence des Maladies Endocriniennes de la Croissance et du Développement, Paris, France
Search for other papers by Juliane Léger in
Google Scholar
PubMed
Search for other papers by Juliane Léger in
Google Scholar
PubMed
Stephane Hatem
Stephane Hatem
Institute of Cardiology and Nutrition, Paris, France
Search for other papers by Stephane Hatem in
Google Scholar
PubMed
Search for other papers by Stephane Hatem in
Google Scholar
PubMed
Michel Polak
Michel Polak
AP-HP.Université de Paris Centre, Hôpital Universitaire Necker Enfants Malades, Département d’Endocrinologie, Diabétologie et Gynécologie Pédiatrique, Paris, France; Centre de Maladies Endocriniennes Rares de la Croissance et du Développement, Centre de Pathologies Gynécologiques Rares, Paris, France
Search for other papers by Michel Polak in
Google Scholar
PubMed
Search for other papers by Michel Polak in
Google Scholar
PubMed
Christine Poitou
Christine Poitou
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service de Nutrition, Centre du Syndrome de Prader-Willi et Autres Obésités Rares, Paris, France
Search for other papers by Christine Poitou in
Google Scholar
PubMed
Search for other papers by Christine Poitou in
Google Scholar
PubMed
Philippe Touraine
Philippe Touraine
AP-HP. Sorbonne Université, Hôpital Universitaire Pitié Salpêtrière-Charles Foix, Service d’Endocrinologie et Médecine de la Reproduction, Centre de Maladies Endocriniennes Rares de la Croissance et du Développement, Centre de Pathologies Gynécologiques Rares, Paris, France
Search for other papers by Philippe Touraine in
Google Scholar
PubMed
Search for other papers by Philippe Touraine in
Google Scholar
PubMed
organs affected, the age of disclosure and the need for paramedical or social care and support. In recent decades, the survival rate of these paediatric patients has improved, and their care pathway now involves a transition to adult care around their
Kirsten Davidse
Kirsten Davidse
Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Kirsten Davidse in
Google Scholar
PubMed
Search for other papers by Kirsten Davidse in
Google Scholar
PubMed
Anneloes van Staa
Anneloes van Staa
Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, the Netherlands
Search for other papers by Anneloes van Staa in
Google Scholar
PubMed
Search for other papers by Anneloes van Staa in
Google Scholar
PubMed
Wanda Geilvoet
Wanda Geilvoet
Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Wanda Geilvoet in
Google Scholar
PubMed
Search for other papers by Wanda Geilvoet in
Google Scholar
PubMed
Judith P van Eck
Judith P van Eck
Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Judith P van Eck in
Google Scholar
PubMed
Search for other papers by Judith P van Eck in
Google Scholar
PubMed
Karlijn Pellikaan
Karlijn Pellikaan
Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Karlijn Pellikaan in
Google Scholar
PubMed
Search for other papers by Karlijn Pellikaan in
Google Scholar
PubMed
Janneke Baan
Janneke Baan
Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Janneke Baan in
Google Scholar
PubMed
Search for other papers by Janneke Baan in
Google Scholar
PubMed
Anita C S Hokken-Koelega
Anita C S Hokken-Koelega
Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands
Dutch Growth Research Foundation, Rotterdam, the Netherlands
Search for other papers by Anita C S Hokken-Koelega in
Google Scholar
PubMed
Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands
Dutch Growth Research Foundation, Rotterdam, the Netherlands
Search for other papers by Anita C S Hokken-Koelega in
Google Scholar
PubMed
Erica L T van den Akker
Erica L T van den Akker
Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Erica L T van den Akker in
Google Scholar
PubMed
Search for other papers by Erica L T van den Akker in
Google Scholar
PubMed
Theo Sas
Theo Sas
Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Diabeter, National Diabetes Care and Research Centre, Rotterdam, the Netherlands
Search for other papers by Theo Sas in
Google Scholar
PubMed
Diabeter, National Diabetes Care and Research Centre, Rotterdam, the Netherlands
Search for other papers by Theo Sas in
Google Scholar
PubMed
Sabine E Hannema
Sabine E Hannema
Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Department of Paediatrics, Leiden University Medical Centre, Leiden, the Netherlands
Search for other papers by Sabine E Hannema in
Google Scholar
PubMed
Department of Paediatrics, Leiden University Medical Centre, Leiden, the Netherlands
Search for other papers by Sabine E Hannema in
Google Scholar
PubMed
Aart Jan van der Lely
Aart Jan van der Lely
Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Aart Jan van der Lely in
Google Scholar
PubMed
Search for other papers by Aart Jan van der Lely in
Google Scholar
PubMed
Laura C G de Graaff
Laura C G de Graaff
Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands
Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Laura C G de Graaff in
Google Scholar
PubMed
Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands
Search for other papers by Laura C G de Graaff in
Google Scholar
PubMed
transfer from paediatric care (PC) to adult care (AC) ( 2 , 3 ). The entire dynamic process in which the paediatric patient is guided towards AC is called ‘transition’, whereas ‘transfer’ is the moment when the patient leaves PC and AC takes over. The
A C Paepegaey
A C Paepegaey
Nutrition Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Pitié-Salpêtrière Hospital, French Reference Center for Prader-Willi Syndrome, Sorbonne Université, Paris, France
Search for other papers by A C Paepegaey in
Google Scholar
PubMed
Search for other papers by A C Paepegaey in
Google Scholar
PubMed
M Coupaye
M Coupaye
Nutrition Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Pitié-Salpêtrière Hospital, French Reference Center for Prader-Willi Syndrome, Sorbonne Université, Paris, France
Search for other papers by M Coupaye in
Google Scholar
PubMed
Search for other papers by M Coupaye in
Google Scholar
PubMed
A Jaziri
A Jaziri
Nutrition Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Pitié-Salpêtrière Hospital, French Reference Center for Prader-Willi Syndrome, Sorbonne Université, Paris, France
Search for other papers by A Jaziri in
Google Scholar
PubMed
Search for other papers by A Jaziri in
Google Scholar
PubMed
F Ménesguen
F Ménesguen
Nutrition Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Pitié-Salpêtrière Hospital, French Reference Center for Prader-Willi Syndrome, Sorbonne Université, Paris, France
Search for other papers by F Ménesguen in
Google Scholar
PubMed
Search for other papers by F Ménesguen in
Google Scholar
PubMed
B Dubern
B Dubern
Nutrition and Gastroenterology Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Armand Trousseau Children’s Hospital, Paris, France
Search for other papers by B Dubern in
Google Scholar
PubMed
Search for other papers by B Dubern in
Google Scholar
PubMed
M Polak
M Polak
Pediatric Endocrinology, Diabetology and Gynecology Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Necker Enfants Malades Hospital University Hospital, Paris, France
Search for other papers by M Polak in
Google Scholar
PubMed
Search for other papers by M Polak in
Google Scholar
PubMed
J M Oppert
J M Oppert
Nutrition Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Pitié-Salpêtrière Hospital, French Reference Center for Prader-Willi Syndrome, Sorbonne Université, Paris, France
Search for other papers by J M Oppert in
Google Scholar
PubMed
Search for other papers by J M Oppert in
Google Scholar
PubMed
M Tauber
M Tauber
Pediatric Endocrinology Department, Children’s Hospital, French Reference Center for Prader-Willi Syndrome, Toulouse, France
Search for other papers by M Tauber in
Google Scholar
PubMed
Search for other papers by M Tauber in
Google Scholar
PubMed
G Pinto
G Pinto
Pediatric Endocrinology, Diabetology and Gynecology Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Necker Enfants Malades Hospital University Hospital, Paris, France
Search for other papers by G Pinto in
Google Scholar
PubMed
Search for other papers by G Pinto in
Google Scholar
PubMed
C Poitou
C Poitou
Nutrition Department, Assistance-Publique Hôpitaux de Paris (AP-HP), Pitié-Salpêtrière Hospital, French Reference Center for Prader-Willi Syndrome, Sorbonne Université, Paris, France
INSERM, UMRS 1166, Nutriomic Group 6, Paris, France
Sorbonne Université, UMRS1166, Paris, France
Search for other papers by C Poitou in
Google Scholar
PubMed
INSERM, UMRS 1166, Nutriomic Group 6, Paris, France
Sorbonne Université, UMRS1166, Paris, France
Search for other papers by C Poitou in
Google Scholar
PubMed
most frequent reasons for the absence of transitional care were disruption in medical follow-up during the pediatric period ( n = 29, 45.3%), late diagnosis of PWS (21.6 ± 11.5 years) ( n = 20, 31.3%), lack of specialized pediatric care since
