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Marieke Stientje Velema, Aline de Nooijer, Ad R M M Hermus, Henri J L M Timmers, Jacques W M Lenders, Olga Husson, and Jaap Deinum

independent, non-profit cancer research organization which coordinates and conducts international translational and clinical research to improve the standard of cancer treatment for patients. The EORTC Quality of Life Group is dedicated to the development of

Open access

Caroline Nguyen, Elisabeth Celestin, Delphine Chambolle, Agnès Linglart, Martin Biosse Duplan, Catherine Chaussain, and Lisa Friedlander

professionals who are not trained in the phenotypic specificity of this disease may steer patients in therapeutic directions with poor outcomes. Furthermore, they can create additional barriers to a good quality of life due to insufficient access to information

Open access

L M Mongioì, R A Condorelli, S La Vignera, and A E Calogero

with primary or central AI. Another aim was to evaluate health-related quality of life of these subjects, assessed by self-administered questionnaire. Subjects and methods Since the prescription of dual-release hydrocortisone has been approved

Open access

Anne Bachelot, Magaly Vialon, Amandine Baptiste, Isabelle Tejedor, Caroline Elie, Michel Polak, Philippe Touraine, and the CRMERC study group

lost to follow-up ( 12 ). Health-related quality of life (QoL) in adult patients with CAH has been variously reported ( 13 , 14 , 15 ). The reason for this heterogeneity in QoL reporting for CAH adults is debated but could relate to variables

Open access

Diana-Alexandra Ertl, Andreas Gleiss, Katharina Schubert, Caroline Culen, Peer Hauck, Johannes Ott, Alois Gessl, and Gabriele Haeusler

assess the subjective and objective quality of current medical care of adult patients with TS, who had been under the care of our pediatric department, to screen for comorbidities and to evaluate their quality of life (QoL). We combined standardized

Open access

Yukari Maki, Kiyomi Horiuchi, and Takahiro Okamoto

treatment, such as quality of life or psychological burden, are essential concerns for cancer survivors ( 6 , 7 ). Besides, labelling people with diagnoses may itself could be harmful to psychological well-being ( 8 , 9 ). Some thoughtful clinicians may

Open access

Julie Wulf Christensen, Karin Folmer Thøgersen, Lars Thorbjørn Jensen, Martin Krakauer, Bent Kristensen, Finn Noe Bennedbæk, and Bo Zerahn

quality of life (QoL). To easily evaluate self-reported QoL, RAND Health Care (Santa Monica, CA, USA) has developed a 36-item short form health survey (SF-36) ( 6 ). The SF-36 questionnaire comprises 36 questions divided into 8 sections. The score from

Open access

Marília D’Elboux Guimarães Brescia, Karine Candido Rodrigues, André Fernandes d’Alessandro, Wellington Alves Filho, Willemijn Y van der Plas, Schelto Kruijff, Sergio Samir Arap, Sergio Pereira de Almeida Toledo, Fábio Luiz de Menezes Montenegro, and Delmar Muniz Lourenço Jr

/anatomical difficulties or limited healthy parathyroid tissue available. As HYPO is expected to be associated with lower quality of life (QoL), either by its symptoms or by the treatment of hypocalcemia ( 17 ), the extent of the surgical procedure and its ideal timing

Open access

Elizabeth J de Koster, Olga Husson, Eveline W C M van Dam, G Sophie Mijnhout, Romana T Netea-Maier, Wim J G Oyen, Marieke Snel, Lioe-Fee de Geus-Oei, Dennis Vriens, and

-effective in a Dutch setting, with lower societal lifelong costs while maintaining the long-term health-related quality of life (HRQoL) in patients undergoing FDG-PET/CT-driven management as compared to routine diagnostic surgery or molecular testing ( 8 , 9

Open access

A J Varewijck, A J van der Lely, S J C M M Neggers, S W J Lamberts, L J Hofland, and J A M J L Janssen

Questionnaires Acromegaly Quality of Life Questionnaire The Acromegaly Quality of Life (AcroQoL) Questionnaire comprises 22 questions. Each question has five possible answers scored 1–5, with a total maximum score of 110 and quoted as a percentage. The score of