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E Kohva, P J Miettinen, S Taskinen, M Hero, A Tarkkanen, and T Raivio

of new DSD patients between 2004 and 2014 ( n  = 290), excluding patients who had been diagnosed before 2004 and had follow-up visits during the survey period. The annual number of new DSD patients remained stable (26 ± 7 patients per year; mean ±  s

Open access

Xichang Wang, Xiaochun Teng, Chenyan Li, Yushu Li, Jing Li, Weiping Teng, Zhongyan Shan, and Yaxin Lai

initiation, reduction and maintenance periods. The present survey found that 96.7% of the physicians recommended that patients review their thyroid function monthly during the initiation period, and a few physicians would recommend that patients review the

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Elizabeth J de Koster, Olga Husson, Eveline W C M van Dam, G Sophie Mijnhout, Romana T Netea-Maier, Wim J G Oyen, Marieke Snel, Lioe-Fee de Geus-Oei, Dennis Vriens, and

were used: the Thyroid Patient-Reported Outcome (ThyPRO), the EQ-5D-5L, and the RAND 36-item Health Survey v2.0 (RAND-36) questionnaire ( 26 , 27 , 28 , 29 ). The 98-item ThyPRO is a validated, thyroid-specific HRQoL questionnaire. It uses a five

Open access

A V Dreval, I V Trigolosova, I V Misnikova, Y A Kovalyova, R S Tishenina, I A Barsukov, A V Vinogradova, and B H R Wolffenbuttel

acromegaly using two population-based surveys (16, 17) . We also analysed the factors contributing to the development of hyperglycaemia. Subjects and methods Patients A total of 97 patients with acromegaly undergoing treatment or long-term follow-up at the

Open access

Violeta Iotova, Camilla Schalin-Jäntti, Petra Bruegmann, Manuela Broesamle, Natasa Bratina, Vallo Tillmann, Olaf Hiort, and Alberto M Pereira

, and sensitivity to patient views and demands. The first survey was addressed to health professionals (HPs). To clarify, ‘HPs’ stands for health professionals (doctors, nurses, etc.). We also assessed existing resources, local and international, self

Open access

Lijin Ji, Na Yi, Qi Zhang, Shuo Zhang, Xiaoxia Liu, Hongli Shi, and Bin Lu

%) No 46 (20%) 16 (27%) 52 (22%) 10 (19%) 21 (22%) 23 (25%) 18 (19%) Management of pregnancy and breastfeeding in prolactinoma patients Of the endocrinologists surveyed, 164 (57%) considered bromocriptine to be the

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Thabiso R P Mofokeng, Salem A Beshyah, Fazleh Mahomed, Kwazi C Z Ndlovu, and Ian L Ross

reminders were sent to enhance the numbers and quality of responses. Repeat submissions from the same internet protocol address were automatically blocked by the survey service. The patients in Africa were identified using a large commercial email database

Open access

Salem A Beshyah, Khawla F Ali, and Hussein F Saadi

major healthcare challenge for patients and physicians during the month of Ramadan. If inappropriately or inadequately managed, AI can lead to anorexia, fatigue, dizziness, nausea, vomiting, hypoglycaemia, hypotension, shock, and potentially death ( 7

Open access

Shota Dzemaili, Jitske Tiemensma, Richard Quinton, Nelly Pitteloud, Diane Morin, and Andrew A Dwyer

methods Design and subjects This cross-sectional needs assessment employed multiple methods within a community-based participatory research framework ( 13 ). We engaged patient community leaders in developing content and validating the online survey

Open access

Isabelle Flechtner, Magali Viaud, Dulanjalee Kariyawasam, Marie Perrissin-Fabert, Maud Bidet, Anne Bachelot, Philippe Touraine, Philippe Labrune, Pascale de Lonlay, and Michel Polak

on the patients’ puberty onset, fertility and biological markers. Predictive factors are therefore difficult to define. The primary objective of this collaborative questionnaire survey by French Reference Centers for Rare Diseases was to collect