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Marieke Stientje Velema, Aline de Nooijer, Ad R M M Hermus, Henri J L M Timmers, Jacques W M Lenders, Olga Husson and Jaap Deinum

independent, non-profit cancer research organization which coordinates and conducts international translational and clinical research to improve the standard of cancer treatment for patients. The EORTC Quality of Life Group is dedicated to the development of

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Anne Bachelot, Magaly Vialon, Amandine Baptiste, Isabelle Tejedor, Caroline Elie, Michel Polak, Philippe Touraine and the CRMERC study group

lost to follow-up ( 12 ). Health-related quality of life (QoL) in adult patients with CAH has been variously reported ( 13 , 14 , 15 ). The reason for this heterogeneity in QoL reporting for CAH adults is debated but could relate to variables

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A J Varewijck, A J van der Lely, S J C M M Neggers, S W J Lamberts, L J Hofland and J A M J L Janssen

Questionnaires Acromegaly Quality of Life Questionnaire The Acromegaly Quality of Life (AcroQoL) Questionnaire comprises 22 questions. Each question has five possible answers scored 1–5, with a total maximum score of 110 and quoted as a percentage. The score of

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Diana-Alexandra Ertl, Andreas Gleiss, Katharina Schubert, Caroline Culen, Peer Hauck, Johannes Ott, Alois Gessl and Gabriele Haeusler

assess the subjective and objective quality of current medical care of adult patients with TS, who had been under the care of our pediatric department, to screen for comorbidities and to evaluate their quality of life (QoL). We combined standardized

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L M Mongioì, R A Condorelli, S La Vignera and A E Calogero

with primary or central AI. Another aim was to evaluate health-related quality of life of these subjects, assessed by self-administered questionnaire. Subjects and methods Since the prescription of dual-release hydrocortisone has been approved

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Shota Dzemaili, Jitske Tiemensma, Richard Quinton, Nelly Pitteloud, Diane Morin and Andrew A Dwyer

, women with infertility have higher levels of stress, anxiety and depression, and all of which can erode the quality of life ( 11 ). However, little is known about the experiences of women with CHH and how they cope with their condition. There is a body

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Natasha Bergmann, Søren Ballegaard, Pernille Holmager, Per Bech, Åke Hjalmarson, Finn Gyntelberg and Jens Faber

(9) , and to correlate with elements of stress as depressive symptoms, reduced well-being, and reduced quality of life (QOL) in patients with IHD (8) . Thus, PPS may be used as a semi-objective measure covering the whole concept of stress. In this

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Eeva M Ryhänen, Ilkka Heiskanen, Harri Sintonen, Matti J Välimäki, Risto P Roine and Camilla Schalin-Jäntti

cure of PHPT. There is consensus that patients with markedly increased serum calcium concentrations or signs of skeletal or nephrological complications should undergo parathyroidectomy (4) . Neuropsychological symptoms and impaired quality of life are

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Agnieszka Bogusz, Svenja Boekhoff, Monika Warmuth-Metz, Gabriele Calaminus, Maria Eveslage and Hermann L Müller

and the craniopharyngeal duct ( 1 , 2 , 3 , 4 , 5 , 6 ). Overall survival (OS) rates after CP are high (87–95% 20-year OS) ( 7 ). However, in long-term survivors, Quality of life (QoL) is frequently reduced due to morbidity caused by close

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Anita Hokken-Koelega, Aart-Jan van der Lely, Berthold Hauffa, Gabriele Häusler, Gudmundur Johannsson, Mohamad Maghnie, Jesús Argente, Jean DeSchepper, Helena Gleeson, John W Gregory, Charlotte Höybye, Fahrettin Keleştimur, Anton Luger, Hermann L Müller, Sebastian Neggers, Vera Popovic-Brkic, Eleonora Porcu, Lars Sävendahl, Stephen Shalet, Bessie Spiliotis and Maithé Tauber

( 8 ) 6. Monitoring • Useful tools to monitor successful outcomes can include evaluation of specific disease markers (e.g., HbA1c), quality-of-life questionnaires, monitoring of attendance/adherence at clinic visits and reduced morbidity