Dafydd Aled Rees
Dafydd Aled Rees
Cardiff University, Cardiff, United Kingdom
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Deborah P Merke
Deborah P Merke
National Institutes of Health Clinical Center and the Eunice Kennedy Shriver National Institute of Child Health and Human Development, Bethesda, USA
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Wiebke Arlt
Wiebke Arlt
MRC LMS, London, United Kingdom
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Aude Brac De La Perriere
Aude Brac De La Perriere
Hospices Civils de Lyon - GHE - Endocrinologie, Bron, France
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Angelica Linden Hirschberg
Angelica Linden Hirschberg
Karolinska Institute, Solna, Sweden
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Anders Juul
Anders Juul
Department of Growth and Reproduction, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark, and Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark
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John Newell-Price
John Newell-Price
The University of Sheffield, Sheffield, United Kingdom
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Alessandro Prete
Alessandro Prete
University of Birmingham, Birmingham, United Kingdom
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Nicole Reisch
Nicole Reisch
Endokrinologie, Nephrologie und weitere Sektionen - Medizinische Klinik und Poliklinik IV - Campus Innenstadt, München, Germany
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Nike M Stikkelbroeck
Nike M Stikkelbroeck
Radboud University Nijmegen, Nijmegen, Netherlands
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Philippe A Touraine
Philippe A Touraine
University Hospitals Pitié Salpêtrière - Charles Foix, Paris, France
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Alex Lewis
Alex Lewis
Neurocrine Biosciences Inc, London, United Kingdom
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John Porter
John Porter
Neurocrine Biosciences Inc, London, United Kingdom
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Helen Coope
Helen Coope
Neurocrine Biosciences Inc, London, United Kingdom
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Richard J Ross
Richard J Ross
The University of Sheffield, Sheffield, United Kingdom
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hydrocortisone in the morning vs a higher dose at night in children, showed no difference in overall 24-h control of markers of adrenal androgen excess ( 2 ). Anecdotally, some patients complain of poor sleep when taking glucocorticoids at night and taking
Elena Valassi
Elena Valassi
Endocrinology Department, Germans Trias i Pujol Hospital and Research Institute, Badalona, Barcelona, Spain
IRCCS, Istituto Auxologico Italiano, Milan, Italy
Department of Medical Biotechnology and Translational Medicine, University of Milan, Milan, Italy
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IRCCS, Istituto Auxologico Italiano, Milan, Italy
Department of Medical Biotechnology and Translational Medicine, University of Milan, Milan, Italy
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Iacopo Chiodini
Iacopo Chiodini
IRCCS, Istituto Auxologico Italiano, Milan, Italy
Department of Medical Biotechnology and Translational Medicine, University of Milan, Milan, Italy
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Department of Medical Biotechnology and Translational Medicine, University of Milan, Milan, Italy
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Richard A Feelders
Richard A Feelders
Division of Endocrinology, Erasmus Medical Centre, Rotterdam, Netherlands
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Cornelie D Andela
Cornelie D Andela
Division of Endocrinology and Centre for Endocrine Tumours, Leiden University Medical Centre, Leiden, Netherlands
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Margueritta Abou-Hanna
Margueritta Abou-Hanna
HRA Pharma Rare Diseases, Châtillon, France
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Sarah Idres
Sarah Idres
HRA Pharma Rare Diseases, Châtillon, France
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Antoine Tabarin
Antoine Tabarin
Department of Endocrinology and INSERM U862 University and CHU of Bordeaux, Pessac, France
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= 97). Initial symptoms A broad range of signs and symptoms were initially noticed by patients, with weight gain, hirsutism or acne, fatigue, sleep disturbances, depressive symptoms, muscle weakness, anxiety and hypertension all being reported
Susan M Webb
Susan M Webb
IIB-Sant Pau, Research Center for Pituitary Diseases, Barcelona, Spain
Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER, Unidad 747), ISCIII, Spain
Department of Endocrinology, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain
Department of Medicine, Universitat Autònoma de Barcelona (UAB), Barcelona, Spain
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Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER, Unidad 747), ISCIII, Spain
Department of Endocrinology, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain
Department of Medicine, Universitat Autònoma de Barcelona (UAB), Barcelona, Spain
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Jette Kristensen
Jette Kristensen
ePAG & Chair of Danish Addison Patient Association, Aarhus, Denmark
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Anna Nordenström
Anna Nordenström
Pediatric Endocrinology, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden
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Diana Vitali
Diana Vitali
ePAG & Chair SOD ITALIA - Italian Patients Organization for Septo Optic Dysplasia and other Neuroendocrine Conditions, Rome, Italy
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Vincent Amodru
Vincent Amodru
Aix-Marseille Université, Institut National de la Santé et de la Recherche Médicale (INSERM), U1251, Marseille Medical Genetics, Institut MarMaRa, Marseille, France
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Lenja Katharina Wiehe
Lenja Katharina Wiehe
EURORDIS - Rare Diseases Europe, Paris, France
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Matt Bolz-Johnson
Matt Bolz-Johnson
EURORDIS - Rare Diseases Europe, Paris, France
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, appearance of more body hair, snoring or sleep apnea, weight gain, skin thickening, jaw growth with toothache, high blood pressure Feeling ‘something is wrong’ Psychological: insomnia, lack of concentration, less memory, unreasonable nervousness, depression
Ramjan Sanas Mohamed
Ramjan Sanas Mohamed
Department of Endocrinology, Imperial College Healthcare NHS Trust, London, UK
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Biyaser Abuelgasim
Biyaser Abuelgasim
Imperial College School of Medicine, Department of Biochemistry, Imperial College Healthcare NHS Trust, London, UK
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Sally Barker
Sally Barker
Imperial College School of Medicine, Department of Biochemistry, Imperial College Healthcare NHS Trust, London, UK
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Hemanth Prabhudev
Hemanth Prabhudev
Department of Endocrinology, Imperial College Healthcare NHS Trust, London, UK
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Niamh M Martin
Niamh M Martin
Department of Endocrinology, Imperial College Healthcare NHS Trust, London, UK
Division of Diabetes, Endocrinology and Metabolism, Imperial College London, London, UK
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Division of Diabetes, Endocrinology and Metabolism, Imperial College London, London, UK
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Karim Meeran
Karim Meeran
Department of Endocrinology, Imperial College Healthcare NHS Trust, London, UK
Division of Diabetes, Endocrinology and Metabolism, Imperial College London, London, UK
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Division of Diabetes, Endocrinology and Metabolism, Imperial College London, London, UK
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Emma L Williams
Emma L Williams
Department of Biochemistry, Imperial College Healthcare NHS Trust, London, UK
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Sarah Darch
Sarah Darch
Department of Biochemistry, Imperial College Healthcare NHS Trust, London, UK
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Whitlock Matthew
Whitlock Matthew
Department of Biochemistry, Imperial College Healthcare NHS Trust, London, UK
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Tricia Tan
Tricia Tan
Department of Endocrinology, Imperial College Healthcare NHS Trust, London, UK
Division of Diabetes, Endocrinology and Metabolism, Imperial College London, London, UK
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Division of Diabetes, Endocrinology and Metabolism, Imperial College London, London, UK
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Florian Wernig
Florian Wernig
Department of Endocrinology, Imperial College Healthcare NHS Trust, London, UK
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-called ‘pseudo-Cushing’s’ and those with subclinical CS in our study. Crucially, an experienced clinician’s assessment is the most important factor to correctly diagnose CS. For example, conditions like obstructive sleep apnoea result in hypoxia-induced stress
Gregory Knowles
Gregory Knowles
Walsall Manor Hospital, Walsall, UK
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Emily Warmington
Emily Warmington
College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK
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Lisa M Shepherd
Lisa M Shepherd
Department of Endocrinology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
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Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
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Jonathan M Hazlehurst
Jonathan M Hazlehurst
Department of Endocrinology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
Institute of Applied Health Research, University of Birmingham, Birmingham, UK
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Institute of Applied Health Research, University of Birmingham, Birmingham, UK
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Anne de Bray
Anne de Bray
Department of Endocrinology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
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Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
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Helena Gleeson
Helena Gleeson
Department of Endocrinology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
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Wiebke Arlt
Wiebke Arlt
Department of Endocrinology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
Medical Research Council London Institute of Medical Sciences, London, UK
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Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
Medical Research Council London Institute of Medical Sciences, London, UK
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Alessandro Prete
Alessandro Prete
Department of Endocrinology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
NIHR Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
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Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
NIHR Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
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.999 Sleep apnoea, n (%) 3 (3.7) – 0.246 Depression, n (%) 3 (3.7) 6 (7.5) 0.325 History of cancer, n (%) 2 (2.4) 1 (1.3) >0.999 Candidiasis, n (%) 1 (1.2) – >0.999 Testicular adrenal rest
Paola Parra Ramírez
Paola Parra Ramírez
Endocrinology & Nutrition Department, La Paz University Hospital, Madrid, Spain
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Patricia Martín Rojas-Marcos
Patricia Martín Rojas-Marcos
Endocrinology & Nutrition Department, La Paz University Hospital, Madrid, Spain
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Miguel Paja Fano
Miguel Paja Fano
Endocrinology & Nutrition Department, Hospital Universitario de Basurto, Bilbao, Spain
Medicine Department, Basque Country University, Bilbao, Spain
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Medicine Department, Basque Country University, Bilbao, Spain
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Marga González Boillos
Marga González Boillos
Endocrinology & Nutrition Department, Hospital Universitario de Castellón, Castellón, Spain
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Eider Pascual-Corrales
Eider Pascual-Corrales
Endocrinology & Nutrition Department, Hospital Universitario Ramón y Cajal, Madrid, Spain
Instituto de Investigación Biomédica Ramón y Cajal (IRYCIS), Madrid, Spain
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Instituto de Investigación Biomédica Ramón y Cajal (IRYCIS), Madrid, Spain
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Ana García-Cano
Ana García-Cano
Biochemistry Department, Hospital Universitario Ramón y Cajal, Madrid, Spain
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Jorge Gabriel Ruiz-Sanchez
Jorge Gabriel Ruiz-Sanchez
Endocrinology & Nutrition Department, Hospital Fundación Jiménez Díaz, Madrid, Spain
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Almudena Vicente
Almudena Vicente
Endocrinology & Nutrition Department, Complejo Universitario de Toledo, Toledo, Spain
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Emilia Gómez-Hoyos
Emilia Gómez-Hoyos
Endocrinology & Nutrition Department, Hospital Clínico Universitario de Valladolid, Valladolid, Spain
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Rui Ferreira
Rui Ferreira
Endocrinology & Nutrition Department, Hospital Universitario de La Princesa, Madrid, Spain
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Iñigo García Sanz
Iñigo García Sanz
General & Digestive Surgery Department, Hospital Universitario de La Princesa, Madrid, Spain
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Mònica Recasens
Mònica Recasens
Endocrinology & Nutrition Department, Hospital Josep Trueta, Servei d’Endocrinologia, Girona, Spain
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Begoña Pla Peris
Begoña Pla Peris
Endocrinology & Nutrition Department, Hospital Universitario de Castellón, Castellón, Spain
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Rebeca Barahona San Millan
Rebeca Barahona San Millan
Endocrinology & Nutrition Department, Hospital Josep Trueta, Servei d’Endocrinologia, Girona, Spain
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María José Picón César
María José Picón César
Endocrinology & Nutrition Department, Complejo Hospitalario Málaga (Hospital Virgen de la Victoria), IBIMA Malaga, Malaga, Spain
CIBEROBN, Madrid, Spain
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CIBEROBN, Madrid, Spain
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Patricia Díaz Guardiola
Patricia Díaz Guardiola
Endocrinology & Nutrition Department, Hospital Universitario Infanta Sofía, Madrid, Spain
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Juan Jesús García González
Juan Jesús García González
Endocrinology & Nutrition Department, Hospital Universitario Virgen de la Macarena, Sevilla, Spain
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Carolina Perdomo
Carolina Perdomo
Endocrinology & Nutrition Department, Clínica Universidad de Navarra, Pamplona, Spain
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Laura Manjón
Laura Manjón
Endocrinology & Nutrition Department, Hospital Universitario Central de Asturias, Oviedo, Spain
Instituto de Investigación Sanitaria del Principado de Asturias (ISPA), Oviedo, Spain
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Instituto de Investigación Sanitaria del Principado de Asturias (ISPA), Oviedo, Spain
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Rogelio García-Centeno
Rogelio García-Centeno
Endocrinology & Nutrition Department, Hospital General Universitario Gregorio Marañón, Madrid, Spain
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Juan Carlos Percovich
Juan Carlos Percovich
Endocrinology & Nutrition Department, Hospital General Universitario Gregorio Marañón, Madrid, Spain
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Ángel Rebollo Román
Ángel Rebollo Román
Endocrinology & Nutrition Department, Hospital Reina Sofía, Córdoba, Spain
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Paola Gracia Gimeno
Paola Gracia Gimeno
Endocrinology & Nutrition Department, Hospital Royo Villanova, Zaragoza, Spain
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Cristina Robles Lázaro
Cristina Robles Lázaro
Endocrinology & Nutrition Department, Hospital Universitario de Salamanca, Salamanca, Spain
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Manuel Morales
Manuel Morales
Biochemistry and Molecular Genetics Department-CDB, Hospital Clinic, IDIBAPS, CIBERehd, Barcelona, Spain
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Felicia Hanzu
Felicia Hanzu
Endocrinology & Nutrition Department, Hospital Clinic, Barcelona, Spain
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Marta Araujo-Castro
Marta Araujo-Castro
Endocrinology & Nutrition Department, Hospital Universitario Ramón y Cajal, Madrid, Spain
Instituto de Investigación Biomédica Ramón y Cajal (IRYCIS), Madrid, Spain
University of Alcalá, Madrid, Spain
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Instituto de Investigación Biomédica Ramón y Cajal (IRYCIS), Madrid, Spain
University of Alcalá, Madrid, Spain
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diabetes mellitus, obesity, dyslipidemia and sleep apnea syndrome. Information about pharmacological history with antihypertensive (type, number, and doses), oral antidiabetic and lipid-lowering medications, potassium supplements and antiplatelet agents was
Marta Araujo-Castro
Marta Araujo-Castro
Department of Endocrinology & Nutrition, Hospital Universitario Ramón y Cajal & Instituto de Investigación Biomédica Ramón y Cajal (IRYCIS), Madrid, Spain
University of Alcalá, Madrid, Spain
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University of Alcalá, Madrid, Spain
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Miguel Paja Fano
Miguel Paja Fano
Department of Endocrinology & Nutrition, OSI Bilbao-Basurto, Hospital Universitario de Basurton & Basque Country University, Medicine Department, Bilbao, Spain
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Begoña Pla Peris
Begoña Pla Peris
Department of Endocrinology & Nutrition, Hospital Universitario de Castellón, Castellón, Spain
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Marga González Boillos
Marga González Boillos
Department of Endocrinology & Nutrition, Hospital Universitario de Castellón, Castellón, Spain
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Eider Pascual-Corrales
Eider Pascual-Corrales
Department of Endocrinology & Nutrition, Hospital Universitario Ramón y Cajal & Instituto de Investigación Biomédica Ramón y Cajal (IRYCIS), Madrid, Spain
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Ana María García-Cano
Ana María García-Cano
Department of Biochemistry, Hospital Universitario Ramón y Cajal, Madrid, Spain
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Paola Parra Ramírez
Paola Parra Ramírez
Department of Endocrinology & Nutrition, Hospital Universitario La Paz Madrid, Spain
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Patricia Martín Rojas-Marcos
Patricia Martín Rojas-Marcos
Department of Endocrinology & Nutrition, Hospital Universitario La Paz Madrid, Spain
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Jorge Gabriel Ruiz-Sanchez
Jorge Gabriel Ruiz-Sanchez
Department of Endocrinology & Nutrition, Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain
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Almudena Vicente
Almudena Vicente
Department of Endocrinology & Nutrition, Hospital Universitario de Toledo, Toledo, Spain
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Emilia Gómez-Hoyos
Emilia Gómez-Hoyos
Department of Endocrinology & Nutrition, Hospital Universitario de Valladolid, Valladolid, Spain
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Rui Ferreira
Rui Ferreira
Department of Endocrinology & Nutrition, Hospital Universitario Rey Juan Carlos, Madrid, Spain
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Iñigo García Sanz
Iñigo García Sanz
Department of General & Digestive Surgery, Hospital Universitario de La Princesa, Madrid, Spain
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Mónica Recasens
Mónica Recasens
Department of Endocrinology & Nutrition, Institut Català de la Salut Girona, Girona, Spain
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Rebeca Barahona San Millan
Rebeca Barahona San Millan
Department of Endocrinology & Nutrition, Institut Català de la Salut Girona, Girona, Spain
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María José Picón César
María José Picón César
Department of Endocrinology & Nutrition, Hospital Universitario Virgen de la Victoria de Málaga, IBIMA Malaga, Spain CIBEROBN, Madrid, Spain
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Patricia Díaz Guardiola
Patricia Díaz Guardiola
Department of Endocrinology & Nutrition, Hospital Universitario Infanta Sofía, Madrid, Spain
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Carolina Perdomo
Carolina Perdomo
Department of Endocrinology & Nutrition, Clínica Universidad de Navarra, Pamplona, Spain
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Laura Manjón
Laura Manjón
Department of Endocrinology & Nutrition, Hospital Universitario Central de Asturias & Instituto de Investigación Sanitaria del Principado de Asturias (ISPA), Oviedo, Spain
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Rogelio García-Centeno
Rogelio García-Centeno
Department of Endocrinology & Nutrition, Hospital Universitario Gregorio Marañón, Madrid, Spain
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Juan Carlos Percovich
Juan Carlos Percovich
Department of Endocrinology & Nutrition, Hospital Universitario Gregorio Marañón, Madrid, Spain
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Ángel Rebollo Román
Ángel Rebollo Román
Department of Endocrinology & Nutrition, Hospital Reina Sofía, Córdoba, Spain
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Paola Gracia Gimeno
Paola Gracia Gimeno
Department of Endocrinology & Nutrition, Hospital Rollo Villanova, Zaragoza, Spain
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Cristina Robles Lázaro
Cristina Robles Lázaro
Department of Endocrinology & Nutrition, Complejo Universitario de Salamanca, Salamanca, Spain
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Manuel Morales
Manuel Morales
Biochemistry and Molecular Genetics Department-CDB, Hospital Clinic, IDIBAPS, CIBERehd, Barcelona, Spain
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María Calatayud
María Calatayud
Department of Endocrinology & Nutrition, Hospital Doce de Octubre, Madrid, Spain
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Simone Andree Furio Collao
Simone Andree Furio Collao
Department of Endocrinology & Nutrition, Hospital Doce de Octubre, Madrid, Spain
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Diego Meneses
Diego Meneses
Department of Endocrinology & Nutrition, Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain
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Miguel Antonio Sampedro Nuñez
Miguel Antonio Sampedro Nuñez
Department of Endocrinology & Nutrition, Hospital Universitario La Princesa, Madrid, Spain
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Verónica Escudero Quesada
Verónica Escudero Quesada
Department of Nephrology, Hospital Universitario Doctor Peser, Valencia, Spain
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Elena Mena Ribas
Elena Mena Ribas
Department of Endocrinology & Nutrition, Hospital Universitario Son Espases, Islas Baleares, Spain
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Alicia Sanmartín Sánchez
Alicia Sanmartín Sánchez
Department of Endocrinology & Nutrition, Hospital Universitario Son Espases, Islas Baleares, Spain
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Cesar Gonzalvo Diaz
Cesar Gonzalvo Diaz
Department of Endocrinology & Nutrition, Hospital Universitario De Albacete, Albacete, Spain
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Cristina Lamas
Cristina Lamas
Department of Endocrinology & Nutrition, Hospital Universitario De Albacete, Albacete, Spain
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Raquel Guerrero-Vázquez
Raquel Guerrero-Vázquez
Department of Endocrinology & Nutrition, Hospital Virgen de la Macarena, Sevilla, Spain
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María del Castillo Tous
María del Castillo Tous
Department of Endocrinology & Nutrition, Hospital Virgen de la Macarena, Sevilla, Spain
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Joaquín Serrano
Joaquín Serrano
Department of Endocrinology & Nutrition, Hospital General Universitario de Alicante, Alicante, Spain
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Theodora Michalopoulou
Theodora Michalopoulou
Department of Endocrinology and Nutrition, Joan XXIII University Hospital, Tarragona, Spain
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Eva María Moya Mateo
Eva María Moya Mateo
Internal Medicine, Hospital Infanta Leonor de Vallecas, Madrid, Spain
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Felicia Hanzu
Felicia Hanzu
Department of Endocrinology & Nutrition, Hospital Clinic, IDIPAS, Barcelona, Spain
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) 0.42 Chronic kidney disease 11.8% ( n = 6) 9.6% ( n = 12/125) 0.67 Sleep apnea syndrome ( n = 170) 6.3% ( n = 3/48) 16.4% ( n = 20/122) 0.08 Active smoking ( n = 173) 26.5% ( n = 13/49) 14.5% ( n = 18
Marcus Imamovic
Marcus Imamovic
Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden
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Nils Bäcklund
Nils Bäcklund
Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden
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Staffan Lundstedt
Staffan Lundstedt
Department of Medical Biosciences, Umeå University, Umeå, Sweden
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Göran Brattsand
Göran Brattsand
Department of Medical Biosciences, Umeå University, Umeå, Sweden
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Elisabeth Aardal
Elisabeth Aardal
Department of Clinical Chemistry and Department of Biomedical and Clinical Sciences, Linköping University, Linköping, Sweden
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Tommy Olsson
Tommy Olsson
Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden
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Per Dahlqvist
Per Dahlqvist
Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden
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; problems with the oral mucosa or saliva; current pregnancy; abnormal circadian rhythm (not sleeping at night between 00:30 and 05:00 h). The study was approved by the local ethics committee in Umeå (Dnr 2018-162-31M). Written informed consent was obtained
Annelies van’t Westeinde
Annelies van’t Westeinde
Department of Women’s and Children’s Health, Karolinska Institutet and Division of Pediatrics, Unit for Pediatric Endocrinology and Metabolic Disorders, Karolinska University Hospital, Stockholm, Sweden
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Leif Karlsson
Leif Karlsson
Department of Women’s and Children’s Health, Karolinska Institutet and Division of Pediatrics, Unit for Pediatric Endocrinology and Metabolic Disorders, Karolinska University Hospital, Stockholm, Sweden
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Valeria Messina
Valeria Messina
Department of Women’s and Children’s Health, Karolinska Institutet and Division of Pediatrics, Unit for Pediatric Endocrinology and Metabolic Disorders, Karolinska University Hospital, Stockholm, Sweden
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Lena Wallensteen
Lena Wallensteen
Department of Women’s and Children’s Health, Karolinska Institutet and Division of Pediatrics, Unit for Pediatric Endocrinology and Metabolic Disorders, Karolinska University Hospital, Stockholm, Sweden
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Manuela Brösamle
Manuela Brösamle
European Patient Advocacy Group for Adrenal Diseases, European Reference Network on Rare Endocrine Conditions (Endo ERN), Endo ERN Coordinating Centre, Leiden, The Netherlands
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Giorgio Dal Maso
Giorgio Dal Maso
ArfSAG (Associazione Refionale Famiglie Sindrome Adreno Genitale) c/o Unita Operativa di Pediatria, Azienda Ospedaliero Universitaria di Bologna, Policlinico S Orsala-Malpighi, Bologna, Italy
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Alessandro Lazzerini
Alessandro Lazzerini
Spanish Association of Congenital Adrenal Hyperplasia (CAH), Spain
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Jette Kristensen
Jette Kristensen
ePAG & Chair of Danish Addison Patient Association, Aarhus, Denmark
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Diana Kwast
Diana Kwast
Dutch Adrenal Society NVACP, Nijkerk, The Netherlands
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Lea Tschaidse
Lea Tschaidse
Department of Endocrinology, Medizinische Klinik IV, Klinikum der Universität München, Munich, Germany
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Matthias K Auer
Matthias K Auer
Department of Endocrinology, Medizinische Klinik IV, Klinikum der Universität München, Munich, Germany
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Hanna F Nowotny
Hanna F Nowotny
Department of Endocrinology, Medizinische Klinik IV, Klinikum der Universität München, Munich, Germany
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Luca Persani
Luca Persani
Department of Medical Biotechnology and Translational Medicine, University of Milan, Milan, Italy
Department of Endocrine and Metabolic Diseases, Istituto Auxologico Italiano IRCCS, Milan, Italy
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Department of Endocrine and Metabolic Diseases, Istituto Auxologico Italiano IRCCS, Milan, Italy
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Nicole Reisch
Nicole Reisch
Department of Endocrinology, Medizinische Klinik IV, Klinikum der Universität München, Munich, Germany
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Svetlana Lajic
Svetlana Lajic
Department of Women’s and Children’s Health, Karolinska Institutet and Division of Pediatrics, Unit for Pediatric Endocrinology and Metabolic Disorders, Karolinska University Hospital, Stockholm, Sweden
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). Although adverse effects in mothers have not been extensively investigated, the studies that did assess these found that on the short term, common reversible side effects in treated mothers included oedema, severe striae, sleep disturbances and weight gain
