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Pediatric team of the Clinical Investigation Center 9302/INSERM, Hospital of Children, Toulouse, France
Institut Toulousain des Maladies Infectieuses et Inflammatoires (Infinity), INSERM UMR1291 - CNRS UMR5051 - Université Toulouse III, Toulouse, France
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Patient-Reported Outcomes Unit (PROQOL), UMR 1123, University Paris Cité, INSERM, Paris, France
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Medicines Agency . Regulatory guidance for the use of health-related quality of life (HRQL) measures in the evaluation of medicinal products - Scientific guideline . (available at: https://www.ema.europa.eu/en/regulatory-guidance-use-health-related-quality-life
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the consequences that transition is associated with a deterioration in wellbeing and quality of life. Transition is about moving from what may be relatively protected circumstances in the family and in school to what is potentially a much more
Department of Endocrinology and Metabolic Diseases, IRCCS Istituto Auxologico Italiano, Milan, Italy
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Department of Clinical Sciences and Community Health, University of Milan, Milan, Italy
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West of Scotland Centre for Genomic Medicine, Queen Elizabeth University Hospital, Glasgow, United Kingdom
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-0367 . Conflict of Interest The authors have nothing to disclose related to the content of this manuscript Funding This publication has been supported by Endo-ERN, which is co-funded by the European Union’s 3rd Health Programme (CHAFEA Framework
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, resulting in clinical under management and poorer quality of life for the adolescent. This requires careful consideration and expertise by health-care providers who manage adolescents especially during the expected pubertal maturational period and as they
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diagnosis and management of young patients with endocrine disorders to participating clinicians and answered questions related to their presentations. The aims of the webinar, and thus this review, were three-fold: (i) to explain how precision medicine can
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Polistena B Granato S Novelli G Di Virgilio R La Torre D D’Angela D & Spandonaro F . Pediatric growth hormone treatment in Italy: a systematic review of epidemiology, quality of life, treatment adherence, and economic impact . PLoS One 2022
Translational and Clinical Research Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK
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John Walton Muscular Dystrophy Research Centre, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
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John Walton Muscular Dystrophy Research Centre, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
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John Walton Muscular Dystrophy Research Centre, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
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Translational and Clinical Research Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK
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John Walton Muscular Dystrophy Research Centre, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
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is stopped, particularly in the context of ongoing GC therapy. Having shown a beneficial effect of testosterone on muscle, bone, and quality of life, it is important to explore whether these young men benefit from ongoing testosterone supplementation
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. Health-related quality of life and psychological well-being in adults with differences/disorders of sex development . Clinical Endocrinology 2017 86 634 – 643 . ( https://doi.org/10.1111/cen.13296 ) 2 Hughes IA Houk C Ahmed SF Lee PA , LWPES